SUPPORT GROUPS

These groups may be able to give you local medical references. Most of the listings are from the RSI Network newsletter, Caroline Rose, editor. LIST IS NOT SORTED, please read it all.


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ALSO: Be sure to see this better organized RSI Support group list. from the Typing Injury FAQ site.

Here's a national list of support groups. Here's some good comments on starting your own RSI support group.
Also, on the Neurotalk Communities there are support forums for a variety of RSI-related issues (chronic pain, TOS, etc.)

The Association for Repetitive Motion Syndromes (ARMS)
P.O. Box 514
Santa Rosa, CA 95402-0514
707/571-0397 (please call between 10 a.m.-5 p.m. only, Pacific Standard Time)


RSI Support Group sponsored by the Irving J. Selikoff Occupational Health Clinical Center at the Mt. Sinai Medical Center in New York City.
Susan Nobel, MSW
The Mount SinaiIrving J. Selikoff Center for Occupational & Environmental Medicine Mount Sinai Medical Center
1425 Madison, Fourth Floor, 79-A
New York, NY 10029-6574
(212) 241-1527 (212) 659-8964

Repetitive Strain Injury Support Group; monthly meetings (one evening, one afternoon). Susan Nobel is a *very* able moderator and members of the group provide a wide variety of information and assistance: references (good and bad) to MDs and legal help; "veteran" RSIs offer "tips" to newer members, general all-round support and a committee of politically proactive people has recently been formed to fight defunding of Mount Sinai and legislative attacks on Worker's Compensation. Susan Nobel also offers one-to-one counseling appointments when members are in need.

People interested in joining the group *must* contact Susan Nobel first.


RSI Support Group forming: Learn about available health resources and exchange information and experiences. For more information, contact Debby Margoluis at (914) 785-6706 or 769-5980.
Injured Workers United, Inc. 
Injured Workers Resource Center of Rochester 
The Barn 
Twelve Corners Presbyterian Church 
1200 South Winton Road 
Rochester, NY 14618
Mailing Address: 
P. O. Box 92035 
Rochester, NY 14692 
(888) 558-HURT
Rena Weiss is the Director. The Resource Center was opened in February
1997, by the Repetitive Motion Injury Action & Support Group to address
the unserved needs of injured workers. The only injured worker organization
by and for injured workers in the Rochester area; newsletter. Membership
is $12.00/year for injured workers (may be waived for financial hardship),
$25.00/year individual sponsor, and $50.00/year professional group sponsor.
Make checks payable to Injured Workers United, Inc. Nonprofit status
pending.

RSI Action: injured and at-risk users sharing resources, educating for RSI prevention, and advocating for changes in the workplace and to the laws.

The Boston-area RSI Drop-In location has been changed!
The Boston area RSI Drop in now being held at Barnes and Nobles at BU (the Boston University Bookstore) in Kenmore Square on the Green Line (right down the street from the CNOT office). This informal group meets the first Wednesday of each month to share information and support. Everybody is welcome. Hope to see you there!
Robyn Gold goldchip@world.std.com for RSI ACTION

OTEP/CNOT/RSI Action now have a new phone number. The office has moved to Kenmore Square in Boston. The new number is (617) 247-6827.

CNOT, the Coalition on New Office Technology, 650 Beacon St., 5th Floor, Boston in Kenmore Square, 617-247-6827 is a great resource. While most of their members are in Massachusetts, they are a national resource. They run various seminars and maintain a referral book with reviews of various doctors related to RSI. If you need to find a good doctor, or you want to check on a referral, or you have a good or bad experience with a doctor, give CNOT a call. Out of the same office is the Office Technology Education Project, with the same phone number. Finally, in this one space, there is RSI Action, (an unaffiliated inspiration for Harvard RSI Action), which works on issues of RSI in the UniveRSIty, across universities in the Boston area.

_Boston_: Kerry Souza , Office of Technology Education Project, 617-247-6827.


Carole Py organizes informal lunch meetings as interest allows in the King of Prussia area (near Philadelphia, PA). This is the same group which formerly has met in Blue Bell, PA and Valley Forge, PA. Email her at carpy001 @ comcast . net or call 215-671-0727
New England Conservatory's Injured Musicians Support Group:
Contact: Merav Reuel/Melissa Ruff Phone: (617) 354-6652/262-1120 x380
Address: 33 Gainsborough St. Boston MA 02115
Email: m.reuel@rocketmail.com
We meet every other Friday (during the academic year) at 6PM at New England Conservatory of Music, 30 Gainsborough St. Boston MA Our next meeting is on Friday May 2ed. Anyone is welcome to come you can call Merav or Melissa for more information.
From: Moe Clancy

long island RSI sufferers have struggled alone. so i am starting a monthly rsi support group.
What: RSI support group
Where: Riverhead Public Library 330 Court St., off of Route 25 in Riverhead
When: Wednesday, May 28, 7-8:30 pm
Who: anyone with RSI and their families and friends
Contact: me at (516) 765-4136 or mc2@hamptons.com, or the library at (516) 727-3228


Contra Costa (Pleasant Hill)
Melinda Moreno
Diablo Valley College Learning Ctr
LC107, 321 Golf Club Road
(510) 685-1230 X 553
Contra Costa RSI Education Group Every 3nd Mon., 7 pm

Tri-City (Union City, Fremont, Newark) Kokila Patel, PT
Tri-City Physical Therapy
2805 Whipple Road, Union City (510) 790-9480 or 441-8906
Every 4th Tues., 7:30 9 pm

Tri-Valley (Dublin, Livermore)
Cyndee McClain (510) 447-0218; fax 5715
Every 1st Tues., 7 pm, Cafeteria Golden State Rehab Hospital 7777 N. Canyon Rd., San Ramon


Northern California Support Groups and Schedules
Los Angeles
May Ellam (213) 259-2456
Every 3rd Sat., 10 am 12:30 pm
Eagle Rock Branch Library
5027 Caspar Ave., nr. Occidental College

Paul sez: from what I've heard, the San Francisco support group may no longer exist. Check with the East Bay group perhaps.

San Francisco CA:
Judy Doane, (415)474-7060. Monthly, first Wednesday, 7-9:30 PM, Booker T. Washington Comm. Service Center, 800 Presidio Ave. at Sutter (in front door, second door on left).

The San Francisco RSI Support Group is back to being run by and for people with RSI, starting this January. Please join us, and be sure to take note of our new location.

San Francisco Repetitive Strain Injury Support Group


Davies Campus, California Pacific Medical Center
Castro and Duboce Streets (6 blocks north of Market)
Room B 2 & 3 - North tower, near the cafeteria.

7:00 - 9:00 PM (first Mondays except holidays)
Speakers from 7:00-8:00, open discussion about the talk and whatever else
is on people's minds from 8:00-9:00, roughly.
BART: transfer to MUNI Metro underground at Civic Center station.
MUNI: K, L, M, F to Castro & Market, #24 or #37 to Castro & Duboce, or take the N to Duboce Park and walk up the hill.
Paid parking at 45 Castro St.  Wheelchair access at Castro & Duboce.
schedule (415) 923-3166
contact (415) 550-1420
sf-rsi@unsealed.net
http://sf-rsi.unsealed.net

NOTE: This group may have been superceded by the previous entry. RSI Support Group of SF 415-931-8780 http://www.ctdrn.org/rsi-support/sanfrancisco/

the East Bay RSI Group meets the 1st Tuesday of each month beginning at 7 p.m.
Paul sez: This is one of the longest running support groups out there. Locations and times and contact information continues to change and I've not kept it current. So the best thing is to go to their Meetup page and get the lastest scoop.

Oh, and now they have a Facebook page as well.

_South_Bay_:
Pat Roggy, (408)280-1134, or Petzoldt Hand Center, (408)261-7660. Second Monday of every month, 7 PM.

_San_Mateo_:
Beth Weiss, (415)696-4562. Meets second Thursday of every month, 7-9 PM. Mills Hospital, 100 So. San Mateo Drive.

Sean Bunnel is in the process of organizing a support group in the San Diego area. Any one wishing to help him can reach him at (619) 230-1673.

Shawn Bunnell has founded the San Diego RSI support group. Their first meeting is scheduled for Saturday, October 31, 1998 at the downtown WMCA, 500 W. Broadway, San Diego. Time is from 11:00 AM to 1:00 PM. For additional information Shawn can be reached at (619) 230-1673, and an RSVP would be appreciated. I'm told there is street parking, and a parking garage across the street fromthe WMCA. [13 August 1999] Tonight is the first meeting of the San Diego RSI Support Group. Could you change your list on FindADoc to indicate me as the new/correct contact for this group? Thx

858.558.7718
rsigroup@hotmail.com

The San Diego RSI Wellness Group usually meets every 3rd Tuesday from 6 - 8
     pm. Call to check meeting topic and location.
San Diego RSI Wellness Group
 


"(contact) ... the San Diego Repetitive Stress Syndrome support group at www.computerathlete.org.
Atlanta GA area: Ken Thomas, (404)377-4943, P.O. Box 901, Decatur GA 30031.

_New_York_City_: Susan Nobel, (212)241-1527. Meets monthly. She is a social worker at Mount Sinai Hospital who offers free counseling to RSI sufferers.

Flagstaff AZ: Caren Joyner, (602)525-2148, or Mary Underhill, (602)525-1838. Every other Weds 7-9 PM at Information Services Building, Northern Arizona University, Classroom 1.

Haven't seen much discussion about Idaho on sorehand. Two support group contacts are listed on the Typing Injury FAQ http://tifaq.org

Dave Howard
29655 N 7th
Athol, ID 83801
(208) 683-1801

Linda Palmer
469 Parkway Circle
Twin Falls, ID 83301
733-3467

Salt Lake City UT: Christy S. Katzl, chris.miller@m.cc.utah.edu. Pennsylvania: A group of us from our physical therapy center for patients with chronic pain and RSI (Hands on Healing in Allentown, PA) meets about once a month for dinner and support talk. There are some folks who travel here from your neck of the woods for PT and our meetings so if you're interested let me know (I coordinate the group). Take good care. -----Original Message----- From: Discussion of Carpal Tunnel Syndrome, Tendonitis etc.. Sent: Tuesday, February 24, 2004 12:28 PM Subject: RSI Group in SE Penna? Does anyone know of a RSI Group in SE PA? There used to be one near Valley Forge that disbanded. _Connecticut_:
Connecticut Chronic Pain Outreach Network (CCPON); for information, call Jewel Shue (pronounced "shoe-ay") at (203)658-2971.

Hi, my name is Joelle Clark. I have RSI and have started a support and wellness group for Southern Connecticut. The meetings will be held in the Darien, Greenwich, and Stamford area; however, I would be happy to talk to anyone about other potential locations. I have done a lot of research, and my mission is to share information and support with anyone going through RSI. I will also have speakers address the group on a variety of RSI-related topics. My first meeting will be held on Tuesday, May 19 at the Darien Public Library from 12:30pm to 1:30pm. I can be reached at (203)967.4341. Please feel free to call me; if I'm not in, please leave me a message. Thanks!

Connecticut:
Connecticut Chronic Pain Outreach Network (CCPON); Jewel Shue (pronounced "shoe-ay"); (203)658-2971.


Cyberspace (America Online): Weds., 9:15 PM EST. Keyword is "dis"; enter "Equal Access Cafe."
San Antonio RSI Support Group
Contact: Mona Bracken E-mail Address: mbracken@accdvm.accd.edu Snail Mail address:
Mona bracken
St. Philip's College CC103
1801 Martin Luther King Drive
San Antonio, TX 78203
Phone (voice/TDD): (210) 531-3514 (during normal office hours or leave message on voice mail. Can access voice mail from TDD as well).
Meetings: 2nd Saturday from 9:45-10:45 AM
Our meeting place is in the process of changing now, so people would need to contact me for the current meeting place.
Groups wanted: These are not (yet) formal groups, but please contact if you'reinterested in forming a group or being in a group, or are just looking for a kindred spirit.

Dallas TX: Merryl Gross, (817)656-5154 or merryl@aol.com.

Central VT: Montpelier/Rutland/Burlington. Steve Larose, slarose@aol.com.

Anchorage AK: Jaz Klinski, P.O. Box 222072, Anchorage AK 99522, (907)248-5767.

(North) Wilmington DE area: Musicians' RSI Support Group, c/o 23 E. Dale Rd., Wilmington DE 19810. Anonymity guaranteed. Allow two weeks for response.

Seattle Repetitive Injury Support Team (RIST) has changed their approach from support meetings to TMS mentoring .... see their web site for details.

Southern OR: Marie Morehead, (541) 535-6404.

Albuquerque NM area: Rebecca, (505)897-4815.


I am starting a Cumulative Trauma Disorders Support Group in the Holland, Michigan area. The first meeting is scheduled for April 12 from 6:00-7:30 p.m. The meeting will take place at Herrick District Library located at 300 South River Avenue in Holland. We will meet in a small conference room at the basement level. We will meet the second Thursday of each month thereafter from 6:00-7:30 at the same location. Please feel free to contact me for more information or directions.
Doug Schwentor
Phone: 616-396-5326
Email: dougs@egl.net
     

The Virginia Repetitive Strain Injury support group
Carole Py organizes informal lunch meetings as interest allows in the King of Prussia area (near Philadelphia, PA). This is the same group which formerly has met in Blue Bell, PA and Valley Forge, PA. Email her at carpy001 @ comcast . net or call 215-671-0727 Portland Oregon RSI Support Group
http://www.creativeicr.com/rsi_home.htm
rsi@creativeicr.com
Albuquerque, New Mexico
A free mutual-support group for people in pain from their computer use, including carpal tunnel, thoracic outlet, tendonitis, repetitive strain injury, cumulative trauma disorder, etc., meets monthly to hear speakers and share experiences and resources. Together, we are learning how to relieve the pain.

4th Wednesday of every month.

The Erna Fergusson Library
3700 San Mateo Blvd NE, Albuquerque.

Free. No Charge ever. Everyone welcome.
For more information or to RSVP: 505 440 4512 abqtrina @ yahoo . com

London, Ontario has this:
London Occupational Safety and Health Information Service (LOSH)
424 Wellington Street,  Room 218, London ON N6A 3P3
Phone: 1 519 433-4156;   Fax: 1 519 433-2887
losh@execulink.com
www.losh.on.ca 

Here's the brochure describing their support group. 1st Tuesday of each month at 6:30 pm Monsignor Roney Building - Room 1 St. Joseph's Health Centre 268 Grosvenor Street


Workers' (Repetitive) Injury Support Team
c/o Dan Jordan
44 Moulton Court
Ingersoll, Ontario
Canada N5C 4C4
phone/fax: (519) 425-4296
Their web site has links to several other Canadian injured workers organizations.
| United Kingdom |

The RSI Association Chapel House 152-156 High St Yiewsley West Drayton UB7 7BB

Tel: 01895 431 134 This phone line is staffed Mon-Fri, 2.00 pm to 4.00 pm, answering machine at other times.

Send 2.50 pounds plus a 10 inch by 7 inch stamped self-addressed 2envelope for a very useful information pack. Please make an additional donation if you find this useful, as they are very short of funds. Cambridge Area
--------------
A Cambridge RSI Support group is run by Pery Burge:
Pery Purge
319 Milton Road
Cambridge
0223 420 254

"Finally there used to be an RSI support  locally in Manchester, the
contact I have is Hilda Palmer on 0161 953 4048.  She was based at
MARSAG at 23 New Mount Street in Manchester."


  • Australians should check the RSI & Overuse Injury Association of the Australian Capital Territory .

    ACT RSI Support Group Inc.
    PO Box 717
    Mawson, ACT. 2607 Australia
    Phone: (06) 290 1984

    And now the good news!!!! We have also begun a support group here in Central Victoria for sufferers, their family and friends. The first meeting will be held on June 2nd, 1.00 pm at 118 Hargreaves Street, Bendigo. Victoria. 3550. If it suits the majority of people we will aim to have the meetings on the first Monday of each month at this time - although we are open to ideas re time slots if an evening meeting is better. So the contact details for this group are: Central Victorian RSI Support Group
    118 Hargreaves Street
    Bendigo. Vic. 3550. Australia.
    Phone: (03) 5442 4857 Fax: (03) 5441 7218


    There are only two active RSI groups in Australia at this point in time. One is based in Canberra and has been going for a number of years and I have set up a Victorian group (with the help of another RSI sufferer) which is almost one year on now. I also have a web page which gives a little info about the Australian issues and of course links with some of the recognised sites which are of great benefit to us all. I don't like to 'advertise' myself at all but if you wish to do so - you can visit the web site at http://www.hitech.net.au/lloyds/
    A Dutch RSI support group web page
    I have started an rsi support group for India. To subscribe, send a mail to: rsi-india-subscribe@yahoogroups.com  . To post message, mailto: rsi-india@yahoogroups.com

    We have presently started as a mailing list but we intend to have a physical presence in Bangalore as well as other cities. We plan to have a library of books, documents and massage devices and have monthly meetings. In the long run, we also consider campaigning for safer workplaces and more empathetic handling of injured employees.

    regards,J.Surya Kumari


    Johann writes: "There are currently, very limited resources available in South Africa for people with RSI. So, I have decided to begin a support group and online community for people in South Africa suffering from RSI. I am currently busy developing a website for this, it is far from complete, but is useful already. I would like to get more visitors and, any advice on how make this successful would be very helpful. The address of the website is: http://www.rsihelp.co.za/"
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